Tuesday, March 25, 2014

An open letter?

I know my husband wants me to "not worry about it" and "let it go" but I am struggling with these suggestions so instead I choose to do this....

Dear Mother at "Tot Time" today,

I don't really know where to start as, truthfully, there were so many offensive statements that you made in our four minute encounter.  First I will say that I feel for you.  Your husband works away for many days out of the month and I have no idea what that must be like.  I depend on my partner for SO MANY things in day - from text messages to last minute ingredients for the supper I am making (because lets be honest, popping into the grocery store with my gang, not gonna happen), and I am sorry that yours is not there to help support you every night.  That must be difficult.  This, however, is still not an excuse for being rude.  When you remarked that you "knew me from somewhere.....oh there it is, your voice, and how you talk to your daughter, does that actually help?" I understand that you were making reference to the fact that my voice gets a little higher (and possibly too sing song-y) as I make an effort to not have a super annoyed voice with my daughter as this is not beneficial for her, she shuts down, she will cover her face with her hands, she is a kid who doesn't respond well to a harsh voice - and I told you, yes it does help, with all of my children.  You see, when you give instructions to your child, maybe once or twice and then they follow through, I might have to encourage Matea, or ask 3,4, or 5 times, or even model for her.  And my little ones are sensitive, don't get me wrong, they don't cry in the corner the minute they skin their knee, but from a very young age we have always told all three of them - "you need to be kind", so yelling at her to put the ball in the bin 7 times, isn't really being kind.  When you asked "Is she on the spectrum"...well that's just not something that you ask people, in my opinion, it would be the equivalent of me asking you what you weigh, and having you respond....over a loud speaker.  When I answered yes, and you responded "yeah I figured as much....".  What I wanted to say was "Really?  Why?  Because she is scooting around in a car making sure not to run over any of the other children who are playing?  Is it because she is running back and forth from one end of the gym to the other.....like 3 other children?  Or it must be because she protested when your son two hand pushed her little brother....for the third time."  But instead I smiled and walked away.


What I would like you to know is, it's hard for us.  I'm sure I looked like a hot mess walking into the gym with three little people, and a "stand in" helper (my brother who was awesome today when our regular helper couldn't make it) pushing a stroller FULL of books (because we just went to the library), and jackets, and snacks - with a baby on my hip, and a beautiful blond tornado hanging onto my one hand that was pushing a stroller, and an energetic seven year old bopping along beside us.  But just getting there is hard for us, and talking to a total stranger about my daughter's diagnosis is hard for me, and when someone can see that someone else is fighting a battle just to get the little things done (like going to "Tot Time") perhaps not the best time to tell her her voice is high and annoying....because you are tired, and your husband works away and your son is the two hand pusher.  You need to be kind :)   






Saturday, March 22, 2014

The wheels fell OFF!

On Friday afternoon a very determined Miss. Matea collected her boots, hat, and outdoor clothing, and requested to go outside.  So I put sweet Asher down for a nap, and headed outside with the M & M's.
 Everything started out great!
 We played in the snow....
 slid down the hills...
 if you were Mack, you ate as much of the fresh snow as you could before your Mom caught you!
and then for some reason Matea thought it would be a good idea for her to sit in the van....in the garage.
I thought that she should play outside in the sunshine, and get some fresh air.
She has her agenda, and I had mine....there was no meeting in the middle for her :(
In this picture she is actually repeatedly yelling "Wah"....it would almost be a little bit funny if she wasn't so loud and persistent!


and that, my friends, is what a five year old having a temper tantrum on the front lawn looks like :)
Tomorrow will be better, right?
Right after I took this picture Mack turned around and scooted RIGHT IN FRONT of a car driven by a little old lady!  I mouthed "I'm sorry", as I was trying in vain to hoist Matea up off the sidewalk and engage her in play (which was dumb because she was literally in the middle of kicking and screaming - of course she doesn't want to go for a sled ride!).  and the little old lady pulled right up beside me, rolled down her window and said......
"don't worry honey!  We have all had children, and we have all been where you are right now!  Don't worry!" 
I thought that was really sweet.



Wednesday, March 5, 2014

Knock, Knock....

We are in always in "that battle" of trying to get Matea to stay in our world for longer and longer periods of time....but she is always doing better.  Every. single. day.























Saturday, March 1, 2014

Autism Spectrum Disorder is "Brutiful"

Having a child "on the spectrum" is both beautiful + brutal.
(This word is totally stolen from here)

For our sweet girl, the wins are always so much sweeter, like when she surprises us by naming ALL the colors of the mini eggs in the bag, when she actually greets a random person without any prompting, when her EA tells us that she "has really noticed Matea's eye contact is improving ALOT!"  - and secretly you high five your inner mama self because we have been "working on" knowing our colors, and you have been driving yourself CRAZY always trying to get her to look you in the eye!  High fives all around!


And of course the lows are just that low.  They are brutal.  Waking up at 4 am and not being able to soothe her back to sleep - then your day just starts at 4 in the morning.  When you quickly turn your head to grab everyone's cups so they can have something to drink with lunch (Daddy is standing in line getting lunch) and when you turn back you realize in the 3.4 seconds your little blond tornado has carried out "the great escape" and is now sitting with an East Indian family in the adjoining dining area, it's funny now but at the time you are so terrified because she doesn't talk, wouldn't tell anyone her name, and could be gone forever in a matter of seconds.....brutal.
 So for me (and this is JUST for me) I tend to hang onto the "beautiful".  And when I say "hang on" I mean absolutely, unequivocally CLING to the moments.  When I am sitting in IPP meetings, or having transition phone calls with the vice principal, when I am discussing our sweet girls "behaviors, which I don't even recognize as behaviors anymore, or listening to something inappropriate she might have done at Pre-K that day. So instead of getting lost in some of the brutal, I grab hold and refuse to let go of all HER beautiful....